Last year, we contributed to a National Voices report that looked into people's experiences of being on NHS waiting lists. People talked about a lack of control and an inability to "get on with one's life". Some described "fighting" the system, and described the sense of being in an information vacuum for long periods of time.
Decisions in healthcare are for the healthcare recipient to make, excepting limited scenarios set out in law. Yet most UK healthcare-related bodies persist in discussing service user decision making under the banner of “shared decision making”. AIMS campaigner Jo Dagustun asks if this is this helpful, or whether it’s now time to ditch the terminology of 'shared decision making'.
I attended Day 2 of the virtual conference, Mobilising people to combat racial inequality: the power of voice. This topic matters to me as the disparity in statistics are stark and impact the engagement and feed into the culture of distrust minoritised communities may feel when accessing health services.
Ahead of the digital exclusion day of our conference (Tues 16 Mar), National Voices Policy and Engagement Officer Savannah Fishel says the issue of digital exclusion goes far beyond trying to maintain contact with patients during the height of a pandemic, and cuts to the core of deepening health inequality More information, and how to register for our conference
I was invited to speak at the Building Back Fairer: reframing the conversation around poverty and health conference today. I spoke about poverty and health inequities following my own experiences of failing to access care or manage my health due to stigma, culture, poverty and lack of confidence. Sir Michael Marmot spoke on ‘Why we need to build back Fairer’ and Jo Bibby spoke on ‘How to build back Fairer.’ My own understanding of poverty and health inequities just scratches the surface and every person has a different experience of health inequity, it is not a blanket term.
Clare Woodford, Senior Policy Advisor at Macmillan, highlights the findings of a new report showing that personalised, integrated care is essential for people with long-term health conditions, particularly during the pandemic, and as we plan our way out of it.