Blogs

What now? Questions to ask after a terminal diagnosis

Mon, 4 December 2017
Jennifer Noel

Asking the right questions, at the right time, can make a real difference to the decisions people make about their treatment and care throughout their lives, including at the end of life.

Jennifer Noel has a background in human rights, specialising in patients' rights in end-of-life care.

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'Low-value medicines' proposal - the impact on patients

Mon, 27 November 2017
Sarah Berry

Sarah Berry from Crohn's and Colitis UK shares why the recent NHS 'low value medicines' consultation could have a detrimental effect on the wellbeing of people with long-term conditions.

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There needs to be a lifetime limit on care costs

Tue, 21 November 2017
Andrew Kaye

Limiting the amount of money that individuals have to contribute towards their own care would represent a fair contract between the state and individuals facing ‘catastrophic’ costs.

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How better record sharing can improve health and social care

Tue, 14 November 2017
Iza Gill

Iza Gill is a mother of two and has been working with the Professional Record Standards Body to provide a parent’s perspective on information sharing in healthcare.

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What's the future for yesterday's women?

Thu, 9 November 2017
Pamela Pond

National patient activist group Radiotherapy Action Group Exposure (R.A.G.E.) share how they have tirelessly campaigned for justice for women affected by radiotherapy-induced injuries.

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Supporting self-management: reflections on the Four Nations Summit

self-management-coach
Mon, 16 October 2017
Anya de Iongh

Anya is based in Dorset and has lived experience of several long term health conditions. She worked as a self-management coach, supporting others to self-manage through one to one coaching and group courses, and is involved in local service evaluation, commissioning and development. In this blog post Anya reflects on her learnings from the Four Nations Self-management Summit.

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Co-production – why and how

Mon, 9 October 2017
Fiona Carey

Fiona Carey shares the why and how of co-production: why it matters and how to start co-producing in practice.

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Person-centred care in 2017: what about at the end of life?

Mon, 2 October 2017
Lloyd Riley

Lloyd Riley, Policy and Research Manager at Compassion in Dying, explains how person-centred care at the end-of-life can have a huge positive impact on a person’s experience.

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The importance of specialist nurses for people with Parkinson’s

Mon, 25 September 2017
Benali Hamdache

Benali Hamdache, Campaigns Engagement Manager at Parkinson’s UK, shares how vital Parkinson’s specialist nurses are for people with the condition and explains why they are increasingly coming under threat.

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Funding, access and what can be done

Wed, 13 September 2017
Jeremy Taylor

Jeremy Taylor, Chief Executive of National Voices, blogs about rationing, health and care funding, and what the future holds.

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