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PiXiE (PXE Support Group)

The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, helping, encouraging and assisting those with PXE and their family members.

Website
http://www.pxe.org.uk/
Email address
elspeth@pxe.org.uk

The PXE support group also aims to heighten the awareness of PXE amongst the medical community, support services and the general public, and link members with each other for mutual support and exchange of ideas. The organisation provides information on the various aspects of PXE, circulates its newsletter, “PiXiE”, containing medical articles and letters from members, and holds meetings to which all members, their families and friends are invited.