We have been working with our members since the start of this crisis to identify and respond to the challenges people living with ongoing health and care needs are facing. We are regularly briefing system leaders (NHSE&I, CQC, RCGP, NHSX, DHSC) about what our members tell us needs to be sorted out for those with ill health or disabilities.
In this submission we set out what we see as the primary ongoing health and care needs during the acute and next phases of the crisis, focusing on some major conditions as well as mental health and health inequalities. For us, the key is active citizen engagement with patients, their families and carers, so that policymakers understand the impact of recent and future system-wide changes and ensure that people’s rights are respected. In order to know which changes are welcome and should be retained, and what is not working for people and needs to be set aside, it is essential that health policymakers and providers at all levels engage patients in a meaningful coproduction process.